Full metadata record
DC Field | Value | Language |
---|---|---|
dc.creator | Silberberg, A. (Agustín) | - |
dc.creator | Robetto, J. (Josefina) | - |
dc.creator | Grimaux, G. (Guadalupe) | - |
dc.creator | Nucifora, L. (Laura) | - |
dc.creator | Moreno-Villares, J.M. (José Manuel) | - |
dc.date.accessioned | 2024-01-12T12:28:48Z | - |
dc.date.available | 2024-01-12T12:28:48Z | - |
dc.date.issued | 2019 | - |
dc.identifier.citation | Silberberg, A. (Agustín); Robetto, J. (Josefina); Grimaux, G. (Guadalupe); et al. "Ethical issues about the paradigm shift in the treatment of children with trisomy 18". European Journal of Pediatrics. (179), 2019, 493 - 497 | es |
dc.identifier.uri | https://hdl.handle.net/10171/68332 | - |
dc.description.abstract | Until recently, trisomy 18 was considered a disease incompatible with life, with a high percentage of electively terminated pregnancies. The usual behavior was denial of treatment. But some medical interventions have changed the survival of children. A search for articles published in the PubMed database on the latest medical decisions in newborns with trisomy 18 was done. Two main subjects were examined: (1) the chances of survival and (2) the perception of quality of life. Trisomy 18 is no longer considered a disease incompatible with life, and the discussion has shifted towards the type of treatment that is appropriate to initiate at birth. There are two medical attitudes towards these children: either palliative care or life-prolonging interventions. With medical intervention, the survival is as high as 23% at 5 years of age. Regarding the quality of life, all decision-makers emphasize the possibility of taking the child home. The physicians’ perception is more pessimistic than that of the parents. Only a few children benefit from medical interventions. Conclusion: There is a rethinking of treatment behavior in children with trisomy 18. The possible quality of life achieved should be further investigated. It seems inappropriate to simply dismiss medical interventions. | es_ES |
dc.language.iso | eng | es_ES |
dc.publisher | Springer | es_ES |
dc.rights | info:eu-repo/semantics/closedAccess | es_ES |
dc.subject | Materias Investigacion::Ciencias de la Salud::Pediatría | es_ES |
dc.subject | Ethics | es_ES |
dc.subject | Trisomy 18 | es_ES |
dc.subject | Palliative care | es_ES |
dc.subject | Quality of life | es_ES |
dc.subject | Interventionist approach | es_ES |
dc.title | Ethical issues about the paradigm shift in the treatment of children with trisomy 18 | es_ES |
dc.type | info:eu-repo/semantics/article | es_ES |
dc.identifier.doi | 10.1007/s00431-019-03531-4 | - |
dadun.citation.endingPage | 497 | es_ES |
dadun.citation.number | 179 | es_ES |
dadun.citation.publicationName | European Journal of Pediatrics | es_ES |
dadun.citation.startingPage | 493 | es_ES |
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