The needs of families who care for individuals with kidney failure on comprehensive conservative care: a qualitative systematic review
Keywords: 
Chronic kidney disease
Conservative care
Family
Needs
Systematic review
Issue Date: 
2022
ISSN: 
1755-6678
Note: 
This is an open access article under the terms of the Creative Commons Attribution‐NonCommercial License
Citation: 
Ania-González, N. (Noelia); Martín-Martín, J. (Jesús); Amezqueta-Goñi, M. (María Pilar); et al. "The needs of families who care for individuals with kidney failure on comprehensive conservative care: a qualitative systematic review". Journal of Renal Care. 48 (4), 2022, 230 - 242
Abstract
Background: Integrating the family of patients with kidney failure on comprehensive conservative care could benefit patients, families, and the health care system. However, there is a knowledge gap in this phenomenon since no systematic review has focused on the families' needs who care for individuals with kidney failure on comprehensive conservative care. Objectives: To understand the primary needs of families who care for people with kidney failure on comprehensive conservative care. Method: A systematic literature review of qualitative studies, followed by a content analysis was carried out. PubMed, CINAHL, and PsycINFO databases were used to search for articles published in English and Spanish between 2010 and 2021. The ENTREQ guideline was used for reporting. Results Five relevant studies were included in this study. The analysis has allowed identifying key aspects of knowledge, psychological, social and spiritual needs of family members of patients with kidney failure on comprehensive conservative care. Conclusions: This systematic review has revealed that families experience a lack of information and continuity of care by health care professionals. Added to this is the psychological burden they bear due to the feeling of indefinite care in time and uncertainty about the death of their loved one. All this, without the necessary support from their immediate family environment and social institutions. In light of these data, a paradigm shift in society and the health care received by these families is essential.

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