Olano-Lizarraga, M. (Maddi)
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- Interventions to empower cardiorenal patients: A systematic review(Wiley, 2021) Vazquez-Calatayud, M. (Mónica); Ania-González, N. (Noelia); Olano-Lizarraga, M. (Maddi)Aims: To identify the most effective interventions to empower cardiorenal patients.Design: A systematic review of the literature has been carried out.Data sources: The PubMed, CINAHL, PsycINFO and Cochrane databases were re-viewed, and journals in the field were manually searched between January and February 2020.Review methods: Five randomized clinical trials and quasi-experimental studies that met the selection and CONSORT & TREND methodological quality criteria were selected.Results: The evidence supports that there are no existing interventions aimed at em-powering cardiorenal patients. However, the interventions to empower people with chronic kidney disease and heart failure suggest that their integration should address seven domains: patient education, sense of self- management, constructive coping, peer sharing, enablement, self-efficacy and quality of life.Conclusion: A gap has been revealed in the literature regarding the empowerment of cardiorenal patients. This review provides relevant information to help design, imple-ment and evaluate interventions to empower these patients by describing the strate-gies used to empower people experiencing both chronic conditions and the tools used for their assessment.Impact: There is a need for further research to design, implement and evaluate a mul-tidimensional intervention that favours the empowerment of cardiorenal patients by using valid and reliable instruments that measure the domains that constitute it in an integrated manner. Interventions aimed at empowering the cardiorenal patient should include seven domains: patient education, sense of self-management, constructive coping, peer sharing, enablement, self-efficacy and quality of life.
- Interventions on the social dimension of people with chronic heart failure: a systematic review of randomized controlled trials(Oxford University Press, 2022) Wolf, A. (Axel); Olano-Lizarraga, M. (Maddi); Martín-Martín, J. (Jesús); Wallström, S. (Sara)Aims The symptom burden of patients with chronic heart failure (CHF), together with social determinants and psychosocial factors, results in limitations to maintain adequate social life and roles, participate in social events and maintain relationships. This situation's impact on health outcomes makes it of utmost importance to develop meaningful social networks for these patients. The primary objective aimed to identify randomized controlled trials that impact the social dimension of people with CHF. The secondary objectives were to analyze the methodological quality of these interventions, establish their components, and synthesize their results. Methods and results A systematic review following PRISMA guidelines was conducted in Pubmed, Scopus, Cochrane CENTRAL, PsychINFO, and CINAHL databases between 2010 and February 2022. The Revised Cochrane risk-of-bias tool for randomized trials was used. The protocol was registered in PROSPERO. Eight randomized controlled trials were identified, among which two were at ‘high risk of bias.’ Interventions were synthesized according to the following categories: delivery format, providers and recipients, and the intervention content domains. Half of the studies showed statistical superiority in improving the intervention group's social support in people with CHF. Conclusion This review has highlighted the scarcity of interventions targeting the social dimension of people with CHF. Interventions have been heterogeneous, which limits the statistical combination of studies. Based on narrative review and vote counting, such interventions could potentially improve social support and self-care, which are important patient reported outcomes, thus warrant further research. Future studies should be co-created with patients and families to be adequately targeted.
- Conociendo el significado que tiene para la persona vivir con una insuficiencia cardíaca crónica(2021-01-26) Olano-Lizarraga, M. (Maddi); Saracibar, M.I. (María Isabel)Introducción: Las enfermedades crónicas y, entre ellas, las enfermedades cardiovasculares son los procesos más prevalentes y que más costes generan a nivel internacional. La insuficiencia cardiaca crónica (ICC) es parte de ellas, ya que es una enfermedad progresiva y debilitante, con múltiples e intensos síntomas y que afecta notablemente al bienestar de la persona. Sin embargo, pese a su gran impacto en múltiples esferas de la vida, la atención sanitaria se centra en la enfermedad y su tratamiento, obviando, en parte, lo que estas personas experimentan. Objetivo general: Comprender el significado que tiene para la persona la experiencia de vivir con una ICC. Metodología: Se ha utilizado la fenomenología hermenéutica y, concretamente, la fenomenología de la práctica de Van Manen. Se han mantenido entrevistas conversacionales individuales con 20 pacientes con ICC. Resultados principales: Se ha desarrollado un texto fenomenológico que recoge los seis temas esenciales que describen esta experiencia: 1) Vivir con una ICC supone un cambio profundo en la persona; 2) La persona que vive con una ICC tiene que aceptar su situación; 3) La persona con una ICC necesita sentir que su vida es normal y mostrarlo así a los demás; 4) La persona con ICC necesita vivir con esperanza; 5) Padecer una ICC hace que la persona tenga continuamente presente el hecho de morir; y 6) La persona con ICC experimenta que su situación influye negativamente en su entorno. Conclusiones: Este estudio ha evidenciado la gran repercusión de la ICC en la totalidad de la persona y la importancia de que la enfermería se acerque a ella desde una visión unitaria. Además, ha mostrado la necesidad de un cambio de enfoque en el modelo de cuidados, redirigiéndolo hacia una práctica centrada en la persona.
- The meaning of living with chronic heart failure(2017) Olano-Lizarraga, M. (Maddi); Perez-Diez-del-Corral, M. (Mercedes); Martín-Martín, J. (Jesús); Ara-Lucea, M.P. (María Pilar); Saracibar, M.I. (María Isabel); Simon-Ricart, A. (Aurora); Oroviogoicoechea, C. (Cristina)
- Development of burnout and moral distress in intensive care nurses: an integrative literature review(Elsevier, 2024) Salas-Bergüés, V. (V.); Olano-Lizarraga, M. (Maddi); Martín-Martín, J. (Jesús); Pereira-Sánchez, M. (Miriam)Aims: To describe, through an integrative literature review, the factors contributing to the development of burnout and moral distress in nursing professionals working in intensive care units and to identify the assessment tools used most frequently to assess burnout and moral distress. Methods: An integrative literature review was carried out. PubMed, CINAHL, PsycINFO, SciELO, Dialnet, Web of Science, Scopus, and Cochrane databases were reviewed from January 2012 to February 2023. Additionally, snowball sampling was used. The results were analysed by using integrative synthesis, as proposed by Whittemore et al., the Critical Appraisal Skills Programme for literature reviews, the Strengthening the Reporting of Observational Studies in Epidemiology guidelines for quantitative observational studies, and the Joanna Briggs Institute checklist for qualitative research were used to evaluate evidence quality. Results: Forty-one articles were selected for review: 36 were cross-sectional descriptive articles, and five were literature reviews. The articles were grouped into five-factor categories: 1) personal factors, 2) organisational factors, 3) labour relations factors, 4) end-of-life care factors, and 5) factors related to coronavirus disease 2019 (COVID-19). The Maslach Burnout Inventory-Human Services Survey and the Moral Distress Survey-Revised instruments were the most commonly used to measure burnout and moral distress. Conclusions: This review highlights the multiple personal, organisational, relational, situational, and end-of-life factors promoting burnout and moral distress among critical care nurses. Interventions in these areas are necessary to achieve nurses' job satisfaction and retention while improving nurses' quality of care.
- Exploring the experience of living with a heart transplant: a systematic review of the literature(Gobierno de Navarra, 2019) Olano-Lizarraga, M. (Maddi); Sarasa-Monreal, M.M. (Mari Mar)El enfoque de los profesionales de la salud está cambiando, pasando de centrarse en la enfermedad a orientarse hacia la salud y la experiencia individual de cada persona. Sin embargo, aunque esta perspectiva se considera relevante para los pacientes trasplantados cardíacos, la atención sanitaria actual se sigue centrando en la prevención y el tratamiento de las complicaciones médicas, dejando de lado otros aspectos importantes de su vivencia. El objetivo de esta revisión sistemática de la literatura fue explorar la experiencia de vivir con un corazón trasplantado y las implicaciones vitales que esto supone. Se realizó una búsqueda en las bases de datos Pubmed, Cinahl, Scielo, Scopus, Dialnet, Cuiden y PsyINFO, y en revistas especializadas y se incluyeron 25 artículos cuyo análisis e interpretación se basó en la metodología propuesta por Dixon-Woods y col y por Evans. Los resultados se agruparon en siete categorías: repercusiones espirituales, repercusiones psicológicas, repercusiones sociales, relación con el donante y el órgano, repercusiones en el ámbito físico y calidad de vida, estrategias de afrontamiento, y sentimientos hacia los profesionales. Los resultados confirman la necesidad de que haya un cambio en la atención que se presta a las personas trasplantadas cardíacas. Se ha visto que aunque el trasplante mejora la calidad y la cantidad de vida, tiene múltiples repercusiones psicosociales que afectan al bienestar y al día a día de estos pacientes.
- Causes, experiences and consequences of the impact of chronic heart failure on the person's social dimension: A scoping review(Wiley, 2021) Wolf, A. (Axel); Olano-Lizarraga, M. (Maddi); Martín-Martín, J. (Jesús); Wallström, S. (Sara)Chronic heart failure (CHF) is a progressive and disabling condition that significantly impacts patients' daily lives. One of its effects is decreased opportunities to participate in social life, leading to reduced social interaction, loneliness, social isolation and lack of social support to continue with their daily life activities. This study aimed to explore the causes, experiences, and consequences of the impact of CHF on the so-cial dimension of the person. According to the Arksey & O'Malley method, a scoping review of the literature was conducted to examine existing knowledge in the area, summarise existing evidence and identify gaps in the literature. The search was conducted in the PubMed, CINAHL, PsychINFO, Scopus, and Web of Science databases from January 2010 to November 2021. Twenty-six articles were identified. The reasons why CHF influences the social dimension of the person were multifactorial and related to physical aspects, sociodemographics, lifestyle changes and the feelings experienced by these patients. Social relationships play a key role, and the benefits of good social relationships and the impact of poor or inadequate social support were identified. Furthermore, the influence of alterations in the social dimension on the CHF patient's clinical outcomes was described. This approach will help to detect and better understand the bidirectional influence that exists in each person between social isolation, relationships, and support life experiences, self-care activities, and morbi- mortality rates. These findings have shown the importance of detecting higher- risk groups and systematically assessing factors related to the social dimension in all patients with CHF.
- Nursing students' experience of providing frontline COVID-19 support: A qualitative study(Wiley, 2021) Vazquez-Calatayud, M. (Mónica); Rumeu-Casares, M.C. (María del Carmen); Olano-Lizarraga, M. (Maddi); Regaira, E. (Elena)Understanding the unique experience of nursing students providing frontline support in COVID-19 hospital wards is crucial for the design of strategies to improve crisis management and mitigate future pandemic outbreaks. Limited research concerning this phenomenon has been published. This qualitative study aimed to understand the experience of providing support from COVID-19 frontline nursing students' perspective. Online interviews were conducted with nine nursing students from April to May 2020; interview data were analyzed by content analysis using Burnard's method. Six main categories emerged from the data analysis: “experiencing a rapid transition from student to professional,” “fear and uncertainty of the unknown,” “resilience throughout the crisis,” “sense of belonging to a team,” “shared responsibility,” and “importance of the profession.” Based on these findings, multicomponent strategies that function in parallel with practical contexts should be developed to enable students to diligently adapt their abilities to their new role and cope with health crises
- Experiencing the possibility of near death on a daily basis: A phenomenological study of patients with chronic heart failure(Elsevier, 2022) Olano-Lizarraga, M. (Maddi); Perez-Diez-del-Corral, M. (Mercedes); Martín-Martín, J. (Jesús); Saracíbar-Razquin, M. (Maribel)Background: Chronic heart failure (CHF) is a syndrome that greatly impacts people’s lives. Due to the poor prognosis of CHF, together with the frequent exacerbations of symptoms, death is a topic that is very present in the lives of patients with CHF. Objective: To explore thoughts about death experienced by patients with chronic heart failure in their daily lives. Methods: A hermeneutic phenomenological study was carried out. Conversational interviews were conducted with 20 outpatients with chronic heart failure. Analysis of the responses was based on the method proposed by van Manen. Results: From the analysis, four main themes emerged: (1) Feeling afraid of the possibility of dying; (2) Acceptance of the possibility of death; (3) Desiring death for relief from suffering; and (4) Striving to continue living to enjoy family. Conclusions: This study presents, as a novel finding, that people with CHF experience the possibility of near death on a daily basis. This experience, which they must encounter on their own, makes them afraid. In addition, some of them, in view of the discomfort they are living, wish to die, with some even considering committing suicide.
- Instrumentos para la valoración de las necesidades de los familiares de pacientes ingresados en cuidados intensivos: una revisión sistemática(Gobierno de Navarra, 2012) Olano-Lizarraga, M. (Maddi); Garcia-Vivar, C. (Cristina)El ingreso de un familiar en una unidad de cuidados intensivos es un evento estresante para los miembros de la familia. Durante ese periodo, la familia padece situaciones de miedo, incertidumbre y cansancio, y dedica toda su atención a la evolución del familiar ingresado. En ese contexto, resulta imprescindible el apoyo y la atención por parte de los profesionales sanitarios mediante la valoración de las necesidades propias de la familia. Existen diversos instrumentos creados para la valoración de dichas necesidades. A través de esta revisión sistemática, se pretende identificar cuáles son esos cuestionarios y analizar críticamente sus características para ofrecer a los profesionales que trabajan en áreas de críticos unos cuestionarios válidos y fiables que puedan utilizar en el abordaje a las familias.