Libros (ICS)
Permanent URI for this collectionhttps://hdl.handle.net/10171/70243
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16 results
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- Report on palliative care development in Uruguay based on the WHO indicators(ATLANTES, WHO Collaborating Centre, Institute for Culture and Society, UNAV, 2023) Béjar, A.C. (Ana Cristina); Bastos, F.V. (Fernanda V.); Della-Valle, A. (Adriana); Garralda, E. (Eduardo); Tripodoro, V.A. (Vilma A.); Centeno, C. (Carlos); Núñez, A. (Ana); Montero, A. (Álvaro)This report describes the current palliative care (PC) situation in Uruguay, highlighting the challenges the country faces in providing PC to over 17,000 Uruguayans who – according to estimates – require PC each year. Commissioned by the WHO - PAHO representation in Uruguay, the WHO Collaborating Centre ATLANTES organised a two-day workshop in Montevideo to examine and adapt the WHO PC development indicators to the Uruguayan context in collaboration with the National PC Program. WHO invited representatives from the health, education, ministries, and social organisations sectors, who worked on a data collection tool whose responses could be categorised into four levels of development: initial, intermediate, established, and advanced. The report highlights each indicator’s strengths and weaknesses and summarises the level of implementation in each area of the country. The empowerment of individuals and communities is explored through two indicators. The first reveals a strong presence of patient and family associations advocating for PC and promoting patient rights, as well as the existence of the Uruguayan Society of Medicine and Palliative Care (SUMCP). The second confirms the existence of a national policy on advance care planning (advanced level). Since 2013, there has been a National PC Plan. PC services are included in the list of health services provided by the primary level of care (with an audit mechanism carried out by the Ministry of Public Health (MSP)), and there is a national authority coordinating PC care crystallised in the National PC Program. The latter depends on and is based on the MSP. Although it has no budget, it has a growing scientific and technical structure with adequate staff (advanced level).
- Report on palliative care development in Benin based on WHO indicators(ATLANTES, WHO Collaborating Centre, Institute for Culture and Society, UNAV, 2023) Bastos, F.V. (Fernanda V.); Benitez, E. (Edgar); Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Tripodoro, V.A. (Vilma A.); Centeno, C. (Carlos); Agbogandé, A. (Anthelme); Gnangnon, F. (Freddy); Montero, A. (Álvaro)Palliative care (PC) is increasingly seen as a global health issue. This report examines the current state of PC in Benin, Africa, and the challenges the country faces in providing accessible and effective PC to its citizens. It has been estimated that more than 62,000 Beninese people need PC every year. The report highlights the importance of PC and the efforts of organisations such as the World Health Assembly, the Lancet Commission and the Astana Declaration to encourage governments to integrate PC into their health plans and make it accessible to all. A two-day hybrid meeting was organised in Cotonou by the WHO Collaborating Centre ATLANTES with WHO-Geneva, WHO-AFRO and WHO-Benin to examine and adapt a set of indicators to cultural realities. The WHO chose Benin and involved stakeholders from the health system, secondary education, vocational training and higher education sectors, as well as the Benin PC Association. ATLANTES provided a data collection tool based on the WHO Conceptual Framework and a four-level rating system: early, intermediate, established and advanced stage. The report highlights the strengths and weaknesses of each indicator and provides a summary of the level of implementation in each area.
- Assessing palliative care in the Eastern Mediterranean Region 2021(World Health Organization. Regional Office for the Eastern Mediterranean, 2024-02)The report identifies context-specific indicators that can be used for evaluation and monitoring of the progress of palliative care development in the Eastern Mediterranean Region.
- Evaluating the integration of palliative care in national health systems: an indicator rating process with EAPC task force members to measure advanced palliative care development(BMC, 2021) Sánchez-Cárdenas, M. (Miguel); Garralda, E. (Eduardo); Centeno, C. (Carlos); Arias-Casais, N. (Natalia); Rhee, J.Y. (John Y.)Background: Palliative care (PC) development cannot only be assessed from a specialized provision perspective. Recently, PC integration into other health systems has been identified as a component of specialized development. Yet, there is a lack of indicators to assess PC integration for pediatrics, long-term care facilities, primary care, volunteering and cardiology. Aim: To identify and design indicators capable of exploring national-level integration of PC into the areas mentioned above. Methods: A process composed of a desk literature review, consultation and semi-structured interviews with EAPC task force members and a rating process was performed to create a list of indicators for the assessment of PC integration into pediatrics, long-term care facilities, primary care, cardiology, and volunteering. The new indicators were mapped onto the four domains of the WHO Public Health Strategy. Results: The literature review identified experts with whom 11 semi-structured interviews were conducted. A total of 34 new indicators were identified for national-level monitoring of palliative care integration. Ten were for pediatrics, five for primary care, six for long-term care facilities, seven for volunteering, and six for cardiology. All indicators mapped onto the WHO domains of policy and education while only pediatrics had an indicator that mapped onto the domain of services. No indicators mapped onto the domain of use of medicines. Conclusion: Meaningful contributions are being made in Europe towards the integration of PC into the explored fields. These efforts should be assessed in future regional mapping studies using indicators to deliver a more complete picture of PC development.
- Atlas de cuidados paliativos de Latinoamérica 2020 (2ª ed.)(IAHPC Press, 2021) Steijn, D. (Danny) van; Sánchez-Cárdenas, M. (Miguel); Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Centeno, C. (Carlos); Lima, L. (Liliana) de; Pastrana, T. (Tania)Los cuidados paliativos comenzaron en el Reino Unido durante la década de los sesenta como respuesta a la falta de atención por el sufrimiento físico y emocional de los pacientes con enfermedades incurables y sus seres queridos. Este movimiento comenzó a globalizarse progresivamente, pero aún hoy en muchos lugares del mundo, hospitales, universidades y sistemas de salud prestan mínima atención al enorme problema del sufrimiento asociado a la enfermedad. La enseñanza de las ciencias de la salud, los sistemas sanitarios y hospitales enfatizan enfermedades más que enfermos. Los cuidados paliativos no han recibido la atención ni los fondos necesarios en comparación a disciplinas más jóvenes pero dedicadas al manejo de enfermedades. Una de las formas más útiles de ayudar al desarrollo de los cuidados paliativos es monitorizar la existencia de programas y el progreso de los cuidados paliativos en cada uno de los países de la región. Los datos son mucho más importantes que la retórica para motivar cambio. El Atlas de Cuidados Paliativos en Latinoamérica, y en especial esta segunda edición, demuestra diferencias importantes en el desarrollo de programas y sin duda será muy útil para tanto los líderes paliativos como para los líderes sanitarios, permitirá la adopción de conductas más exitosas que ayuden a desarrollar cuidados paliativos en Latinoamérica y ayudará a unificar futuros criterios para los cuidados paliativos primarios, secundarios y terciarios. Este gran equipo de voluntarios ha trabajado desinteresadamente para generar información que no está disponible en ningún otro registro. Muchos miles de pacientes y sus familias se beneficiarán del gran esfuerzo de este grupo y por ello estoy profundamente agradecido a los colegas y organizaciones que nos permiten un conocimiento profundo del estado de los cuidados paliativos en nuestra región.
- EAPC Atlas of Palliative Care in Europe 2019(EAPC Press, 2019) Mosoiu, D. (Daniela); Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Hasselaar, J. (Jeroen); Centeno, C. (Carlos); Arias-Casais, N. (Natalia); Lima, L. (Liliana) de; Clark, D. (David); Rhee, J.Y. (John Y.); Ling, J. (Julie)
- Additional indicators to assess palliative care development(2019-02-22) Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Centeno, C. (Carlos); Arias-Casais, N. (Natalia); Lima, L. (Liliana) de; López-Fidalgo, J. (Jesús); Rhee, J.Y. (John Y.)This is a short compilation of Health Indicators Assessing the Level of Palliative Care Development at the International Level. These are additional indicators to another published book: Brief Manual on Health Indicators Monitoring Global Palliative Care Development (http://hdl.handle.net/10171/56523).
- Brief manual on health indicators monitoring global palliative care development(IAHPC Press, 2019) Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Centeno, C. (Carlos); Arias-Casais, N. (Natalia); Lima, L. (Liliana) de; López-Fidalgo, J. (Jesús); Rhee, J.Y. (John Y.)
- Atlas de Cuidados Paliativos en Latinoamérica. Edición Cartográfica 2013(International Association for Hospice and Palliative Care (IAHPC), 2013) Pons-Izquierdo, J.J. (Juan José); Centeno, C. (Carlos); Lima, L. (Liliana) de; Pastrana, T. (Tania)El Atlas de Cuidados Paliativos en Latinoamérica es un estudio descriptivo de análisis comparativo de datos y/o estimaciones sobre el desarrollo de servicios e iniciativas de Cuidados Paliativos en Latinoamérica. El desarrollo y modelo del Atlas de Cuidados Paliativos en Latinoamérica se basó en el Atlas de Cuidados Paliativos de la Asociación Europea de Cuidados Paliativos (EAPC). La información se obtuvo por medio de una encuesta semi-estructurada a profesionales de Cuidados Paliativos en cada país. Este instrumento fue elaborado por Tania Pastrana, Carlos Centeno y Liliana De Lima y contó con la asesoría de Isabel Torres. El instrumento fue probado en un estudio piloto con 6 personas y de acuerdo a los resultados se hicieron los cambios necesarios. En esta primera versión del Atlas Latinoamericano de Cuidados Paliativos fueron incluidos 19 países latinoamericanos, con lenguaje oficial español o portugués
- Atlas of Palliative Care in the Eastern Mediterranean Region(IAHPC, 2017) Tfayli, A. (Arafat); Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Rihan, A. (Alaa); Centeno, C. (Carlos); Lima, L. (Liliana) de; Rhee, J.Y. (John Y.); Osman, H. (Hibah)BACKGROUND Information on the state of palliative care development in Eastern Mediterranean countries is scant. This study is the first of its kind in conducting a systematic descriptive analysis of palliative care development in the region. AIMS To describe the current status of palliative care in the Eastern Mediterranean Region according to the World Health Organization (WHO) public health strategy for integrating palliative care: policies, opioid accessibility, services availability, and educational programs plus palliative care professional activity. METHODS Surveys were sent by email to two leaders of palliative care in each country. A follow-up telephone interview was conducted with one leader from each available country. A scoping review of the state of palliative care in Eastern Mediterranean countries using the WHO palliative care public health strategy was conducted using PubMed, CINAHL, Embase, and Google Scholar. RESULTS Sixty eight percent (15/22) of countries in the EMRO region responded to the survey. Of the fifteen participating countries, Saudi Arabia had the highest number of total palliative care programs across the Eastern Mediterranean region, followed by Egypt and Jordan, while Iraq and the Occupied Palestinian Territories reported no palliative care programs. Saudi Arabia, Iran, and Lebanon have official licensing programs in palliative care for physicians, and a further four countries (Egypt, Jordan, Oman, and Qatar) have developed other advanced training programs (such as Masters or Diploma). In terms of education, Jordan, Oman, and Lebanon report having at least one medical school teaching palliative care as an independent subject, though four additional countries (Egypt, Kuwait, Pakistan, and Tunisia) report teaching palliative care integrated into other subjects. There are no nursing schools in the region that teach palliative care as an independent course. In terms of policies, only Tunisia has a stand-alone national palliative care plan. However, 73% (11/15) of participating countries reported having a section for palliative care within their national cancer plan/strategy. In terms of medicine availability, Saudi Arabia reported the highest opioid consumption in morphine equivalence, excluding methadone, at 33.55 mg/capita/year in 2015, with the next highest being Kuwait at 5.59 mg/capita/year. Finally, in terms of professional activity, Morocco, Tunisia, Lebanon, Jordan, Saudi Arabia, Kuwait, and Iran reported having national palliative care associations, though not all are currently active. CONCLUSION Palliative care remains underdeveloped in most countries. Efforts and resources should be mobilized to address the gaps identified to ensure that palliative care becomes accessible across the region.