Libros (ICS)
Permanent URI for this collectionhttps://hdl.handle.net/10171/70243
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- Atlas de cuidados paliativos de Latinoamérica 2020 (2ª ed.)(IAHPC Press, 2021) Steijn, D. (Danny) van; Sánchez-Cárdenas, M. (Miguel); Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Centeno, C. (Carlos); Lima, L. (Liliana) de; Pastrana, T. (Tania)Los cuidados paliativos comenzaron en el Reino Unido durante la década de los sesenta como respuesta a la falta de atención por el sufrimiento físico y emocional de los pacientes con enfermedades incurables y sus seres queridos. Este movimiento comenzó a globalizarse progresivamente, pero aún hoy en muchos lugares del mundo, hospitales, universidades y sistemas de salud prestan mínima atención al enorme problema del sufrimiento asociado a la enfermedad. La enseñanza de las ciencias de la salud, los sistemas sanitarios y hospitales enfatizan enfermedades más que enfermos. Los cuidados paliativos no han recibido la atención ni los fondos necesarios en comparación a disciplinas más jóvenes pero dedicadas al manejo de enfermedades. Una de las formas más útiles de ayudar al desarrollo de los cuidados paliativos es monitorizar la existencia de programas y el progreso de los cuidados paliativos en cada uno de los países de la región. Los datos son mucho más importantes que la retórica para motivar cambio. El Atlas de Cuidados Paliativos en Latinoamérica, y en especial esta segunda edición, demuestra diferencias importantes en el desarrollo de programas y sin duda será muy útil para tanto los líderes paliativos como para los líderes sanitarios, permitirá la adopción de conductas más exitosas que ayuden a desarrollar cuidados paliativos en Latinoamérica y ayudará a unificar futuros criterios para los cuidados paliativos primarios, secundarios y terciarios. Este gran equipo de voluntarios ha trabajado desinteresadamente para generar información que no está disponible en ningún otro registro. Muchos miles de pacientes y sus familias se beneficiarán del gran esfuerzo de este grupo y por ello estoy profundamente agradecido a los colegas y organizaciones que nos permiten un conocimiento profundo del estado de los cuidados paliativos en nuestra región.
- EAPC Atlas of Palliative Care in Europe 2019(EAPC Press, 2019) Mosoiu, D. (Daniela); Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Hasselaar, J. (Jeroen); Centeno, C. (Carlos); Arias-Casais, N. (Natalia); Lima, L. (Liliana) de; Clark, D. (David); Rhee, J.Y. (John Y.); Ling, J. (Julie)
- Additional indicators to assess palliative care development(2019-02-22) Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Centeno, C. (Carlos); Arias-Casais, N. (Natalia); Lima, L. (Liliana) de; López-Fidalgo, J. (Jesús); Rhee, J.Y. (John Y.)This is a short compilation of Health Indicators Assessing the Level of Palliative Care Development at the International Level. These are additional indicators to another published book: Brief Manual on Health Indicators Monitoring Global Palliative Care Development (http://hdl.handle.net/10171/56523).
- Brief manual on health indicators monitoring global palliative care development(IAHPC Press, 2019) Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Centeno, C. (Carlos); Arias-Casais, N. (Natalia); Lima, L. (Liliana) de; López-Fidalgo, J. (Jesús); Rhee, J.Y. (John Y.)
- Atlas de Cuidados Paliativos en Latinoamérica. Edición Cartográfica 2013(International Association for Hospice and Palliative Care (IAHPC), 2013) Pons-Izquierdo, J.J. (Juan José); Centeno, C. (Carlos); Lima, L. (Liliana) de; Pastrana, T. (Tania)El Atlas de Cuidados Paliativos en Latinoamérica es un estudio descriptivo de análisis comparativo de datos y/o estimaciones sobre el desarrollo de servicios e iniciativas de Cuidados Paliativos en Latinoamérica. El desarrollo y modelo del Atlas de Cuidados Paliativos en Latinoamérica se basó en el Atlas de Cuidados Paliativos de la Asociación Europea de Cuidados Paliativos (EAPC). La información se obtuvo por medio de una encuesta semi-estructurada a profesionales de Cuidados Paliativos en cada país. Este instrumento fue elaborado por Tania Pastrana, Carlos Centeno y Liliana De Lima y contó con la asesoría de Isabel Torres. El instrumento fue probado en un estudio piloto con 6 personas y de acuerdo a los resultados se hicieron los cambios necesarios. En esta primera versión del Atlas Latinoamericano de Cuidados Paliativos fueron incluidos 19 países latinoamericanos, con lenguaje oficial español o portugués
- Atlas of Palliative Care in the Eastern Mediterranean Region(IAHPC, 2017) Tfayli, A. (Arafat); Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Rihan, A. (Alaa); Centeno, C. (Carlos); Lima, L. (Liliana) de; Rhee, J.Y. (John Y.); Osman, H. (Hibah)BACKGROUND Information on the state of palliative care development in Eastern Mediterranean countries is scant. This study is the first of its kind in conducting a systematic descriptive analysis of palliative care development in the region. AIMS To describe the current status of palliative care in the Eastern Mediterranean Region according to the World Health Organization (WHO) public health strategy for integrating palliative care: policies, opioid accessibility, services availability, and educational programs plus palliative care professional activity. METHODS Surveys were sent by email to two leaders of palliative care in each country. A follow-up telephone interview was conducted with one leader from each available country. A scoping review of the state of palliative care in Eastern Mediterranean countries using the WHO palliative care public health strategy was conducted using PubMed, CINAHL, Embase, and Google Scholar. RESULTS Sixty eight percent (15/22) of countries in the EMRO region responded to the survey. Of the fifteen participating countries, Saudi Arabia had the highest number of total palliative care programs across the Eastern Mediterranean region, followed by Egypt and Jordan, while Iraq and the Occupied Palestinian Territories reported no palliative care programs. Saudi Arabia, Iran, and Lebanon have official licensing programs in palliative care for physicians, and a further four countries (Egypt, Jordan, Oman, and Qatar) have developed other advanced training programs (such as Masters or Diploma). In terms of education, Jordan, Oman, and Lebanon report having at least one medical school teaching palliative care as an independent subject, though four additional countries (Egypt, Kuwait, Pakistan, and Tunisia) report teaching palliative care integrated into other subjects. There are no nursing schools in the region that teach palliative care as an independent course. In terms of policies, only Tunisia has a stand-alone national palliative care plan. However, 73% (11/15) of participating countries reported having a section for palliative care within their national cancer plan/strategy. In terms of medicine availability, Saudi Arabia reported the highest opioid consumption in morphine equivalence, excluding methadone, at 33.55 mg/capita/year in 2015, with the next highest being Kuwait at 5.59 mg/capita/year. Finally, in terms of professional activity, Morocco, Tunisia, Lebanon, Jordan, Saudi Arabia, Kuwait, and Iran reported having national palliative care associations, though not all are currently active. CONCLUSION Palliative care remains underdeveloped in most countries. Efforts and resources should be mobilized to address the gaps identified to ensure that palliative care becomes accessible across the region.
- APCA Atlas of Palliative Care in Africa(AHPC Press, 2017) Pons-Izquierdo, J.J. (Juan José); Garralda, E. (Eduardo); Namisango, E. (Eve); Centeno, C. (Carlos); Lima, L. (Liliana) de; Rhee, J.Y. (John Y.); Powell, R.A. (Richard A.); Luyirika, E. (Emmanuel)BACKGROUND Since Wright & Clark’s book on palliative care in Africa in 2006, there has not been a comprehensive overview describing the state of palliative care development in African countries. AIMS To describe the current state of palliative care (PC) development in Africa according to the WHO’s Public Health Strategy for integrating PC: policies, availability and access to medicines, education, and service provision. METHODS Qualitative interviews were conducted with 16 Country Experts (March-August 2016). From those interviews, 367 indicators were derived, 130 after exclusion criteria and content analysis were performed. The Country Experts rated the indicators for validity & feasibility, a 14-member international committee of experts participated in a two-round modified UCLA-RAND Delphi consensus, and the co-authors (November-December 2016) ranked the indicators. The final 19 indicators were further defined and sent to 66 Key Country Informants from 51 African countries (January-March 2017). RESULTS Surveys were received from 89% (48/54) of African countries. Uganda, South Africa, and Kenya have the highest number of specialised hospice and PC services (71% of identified PC services); 19% (9/48) have no identified hospice and PC services. 22% (12/48) indicated having stand-alone PC policies, and 42% (20/48) reported having a dedicated person for PC in the Ministry. Zambia, Uganda, South Africa, Kenya, Ghana, and Egypt reported some official form of physician accreditation. Opioid consumption per capita was low (75% countries had <1 mg consumption/capita/year) compared to the global average (43mg/capita/year), with highest consumption in Mauritius, South Africa, Namibia, and Morocco. 54% (26/48) reported having a national PC association. CONCLUSIONS This study shows that there is limited PC development in Africa, but there is also a significant improvement in the number of countries with hospice and PC services, compared to previous reports. Improvements in advocacy were identified, with more than half of countries reporting a national PC association. Governments need to take the steps to improve education, increase the number of services, and ensure safe access to opioids.
- Specialisation in Palliative Medicine for Physicians in Europe 2014 - A supplement of the EAPC Atlas of Palliative Care in Europe(EAPC Press, 2014) Biasco, G. (Guido); Centeno, C. (Carlos); Bolognesi, D. (Deborah)This booklet describes the existing programmes on specialisation in palliative medicine within the WHO European region.
- Recommendations of the European Association for Palliative Care (EAPC) For the Development of Undergraduate Curricula in Palliative Medicine At European Medical Schools(EAPC (European Association for Palliative Care), 2013) Elsner, F. (Frank); Cetto, G. (Gianluigi); Eychmuller, S. (Steffen); Mason, S. (Stephen); Centeno, C. (Carlos); Conno, F. (Franco) de; Larkin, P. (Phil); Ellershaw, J. (John); Filbet, M. (Marilène)
- Atlas de Cuidados Paliativos en Latinoamérica(IAHPC Press, 2012) Rocafort, J. (Javier); Eisenchlas, J. (Jorge); Centeno, C. (Carlos); Lima, L. (Liliana) de; Wenk, R. (Roberto); Monti, C. (Carolina); Pastrana, T. (Tania)